What our Panel said about My Health Record... September 2018

This month, COORDINARE revisited the topic of My Health Record and asked people in South Eastern NSW whether they plan to opt out of the system. 

More than half of the Consumer Health Panel participants (58%) were aware that a My Health Record will be created for them by the end of 2018, unless they choose to opt out.

It’s encouraging to see that 31% of participants had spoken to their doctor about the benefits of My Health Record. In most cases, it was the doctor who initiated the discussion. More than half of the survey participants (56%) indicated that they would like their doctor or pharmacist to use My Health Record.

The majority of people (84%) had not attended any events relating to My Health Record. Of those who did, 100% found it helpful! When we asked the Panel where they had come across information about My Health Record, the most popular platforms were:

  • newspaper (23%)
  • radio (18%)
  • television (17%).

A small group of people felt that online information about My Health Record was not detailed enough.

Above: Panel participants were asked where they had come across information about My Health Record.

Encouragingly, 2 out of 5 people indicated that they already have a My Health Record and/or don’t plan to opt out.

However, 1 in 5 people said that they have already opted out. Of those who opted out, 80% of people did so via the My Health Record website. The most common reasons for opting out related to perceived concerns about data security and privacy.

Of those people who do have a My Health Record, more than half (56%) have logged in through MyGov. 19% of people haven’t logged in but are happy for their healthcare providers to do so. 


COORDINARE would like to thank all of our Consumer Health Panel participants for sharing questions and concerns about My Health Record. One panel member said: “It’s good to know that my records can be accessed by any health provider regardless of where I am in Australia. Also that I can access it myself.”

My Health Record security and privacy is protected by strict laws and penalties to prevent unauthorised access. Only registered healthcare provider organisations (e.g. general practices, pharmacies, hospitals) involved in your care, who are registered with the My Health Record System Operator, are allowed by law to access your My Health Record.

You can also allow others to view your record - such as a partner, child, parent or carer - by making them an authorised representative, or a nominated representative.

All documents in My Health Record are set to general access for healthcare providers by default. This means any providers who are involved in your care can see this information, but you can set privacy and security controls at any time. You can set up a record access code to give access to selected healthcare organisations or control access to specific document to limit who can view them.

Within your My Health Record, you can also see who has accessed your record and set up SMS or email notifications to see when it is accessed.

It's okay to change your mind! If you already have a My Health Record, and decide you don’t want one anymore, you can cancel it at any time by following these instructions. Alternatively, you can re-register for My Health Record at any time by following these steps.

For further information, visit www.myhealthrecord.gov.au, the FAQ page, or call the help line on 1800 723 471.

If you live in Southern NSW and are interested in finding out more about the benefits of My Health Record, COORDINARE has partnered with the Southern NSW Local Health District to host a series of community information sessions. Click here for more details about the remaining events.

 We will also be having a mixture of stalls at community expos and events, and attendance at meetings of local community groups. If you are part of a community group and would like us to attend and provide more information about My Health Record, contact us at digitalhealth@coordinare.org.au.  

Tell us your story!

We want to share some insight into how those already using My Health Record across our region are seeing the benefits for themselves and those around them. You can also read more about how Corey, Brad and Ruby use My Health Record!
If you are an enthusiastic My Health Record user who has experienced the benefits of having your important health information in your hands, please contact us at digitalhealth@coordinare.org.au to share your story.


Please note: COORDINARE is not a clinical health service and cannot advise individuals about their health care. Always seek the advice of your doctor or other qualified health provider regarding any questions or concerns you may have about a particular medical condition.