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Palliative Approach Framework
Patient and carer information
This page of resources aims to provide essential information for carers and significant others to help them assess, plan and care for their person who has an advancing life-limiting illness.
Information about palliative and end of life care
The following links provide important information and resources for people receiving palliative and end of life care:
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What is palliative care
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CareSearch palliative care booklet
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Pain management and medications
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Conversation guide - What matters to me
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National Palliative Care Service Directory
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Advance Care Plan (ACP)
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Create your plan in NSW (ACP)
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What do you want for your end of life care (ACP)
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End of life planning checklist / worksheet
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Residential Aged Care Homes (RACH) - questions to ask
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End of life terminology
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Funeral planning checklist
Carers and Families
The following links provide important information and resources for carers and families of people receiving palliative and end of life care.
Supports and services
- Carer Gateway provides emotional and practical services and supports for carers - call 1800 422 737 or visit their website.
- Caresearch resources for carers and the person they are caring for.
- CarerHelp information pack - includes factsheets and practical pointers to help you get started in caring, dealing with advancing illness, and managing grief and bereavement.
Communication tools
Using the carer needs assessment tool helps to identify your needs and also provides prompts for discussing your needs as well as the needs of the person you are caring for with healthcare professionals.
Carer needs assessment tools include:
Specific supports and resources
The following tabs provide important information and resources for priority population groups such as Multicultural people, Aboriginal and Torres Strait Islander people, LGBTIQ+ and more.
Dying at home
Caring @ Home resources for Aboriginal and Torres Strait Islander families, includes:
- Tip sheets to support the provision of palliative care at home
- Step by step guides for medications and symptom management at home
- Medicines book, wall charts and self-print labels to support medication management
- Training videos which are available in English and First Nations languages.
Medications and pharmacy
Return to Dreaming - information and support for patients and carers.
Advance care planning
Aboriginal and Torres Strait Islander discussion stater and discussion cards.
Understanding sickness
Indigenous Program of Experience in Palliative Care Approach (IPEPA) animated video series - ten short videos narrated by Sean Choolburra; join Sean on a journey of understanding from getting 'sick' to understanding palliative care, loss, grief and healing.
Video provided by the IPEPA.
Funeral planning
Steps for planning for after death (checklist) - planning for burial, cremation, funerals and ways to commemoration.
Funding:
- NSWALC funeral fund - learn more about the terms and conditions here and access the funeral grant claim form here.
- Services Australia death of a loved one - payment information and help for families.
- Funeral without means: policy directive destitute persons - a 'destitute person' is a deceased person with no money or assets and whose elatives and friends are unable to pay the cost of a cremation or burial.
Transport:
- Aboriginal Funeral Transport Sorry Business - provides assistance with transport for Aboriginal communities throughout NSW to attend funerals within NSW.
Wills
What to think about and include in your Will - there are many important decisions to make when creating your Will. Learn about some things to think about before you see a professional to have your Will made.
As an Aboriginal person you may have culturally sensitive requirements to document in your Will. These may include how to provide for kinship, burial, secret knowledge.
The following handbooks developed by the NSW Trustee and Guardian provide helpful information to support you through the planning process:
- Taking care of business handbook - discusses the four documents to help you plan ahead including making a Will, power of attorney, enduring guardianship and advance care planning.
- Aboriginal wills handbook - a practical guide to make culturally appropriate Wills for Aboriginal people.
Dying at home
Caring @ Home resources for Aboriginal and Torres Strait Islander families.
- Tip sheets to support the provision of palliative care at home
- Step by step guides for medications and symptom management at home
- Medicines book, wall chart and self-print labels to support medication management
- Training videos which are available in English and First Nations languages.
Medications and pharmacy
Return to Dreaming - information and support for patients and carers.
Advance care planning
Aboriginal and Torres Strait Islander discussion starter and discussion cards.
Understanding sickness
Indigenous Program of Experience in Palliative Care Approach (IPEPA) animated video series - ten short videos narrated by Sean Choolburra; Join Sean on a journey of understanding from getting 'sick' to understanding palliative care and loss grief and healing.
- Palliative care factsheets - available in 21 languages and also includes the English version attached to the translated version.
- Translating and interpreter service or call 1800 131 450.
- Radio programs / podcasts in non-English languages on palliative care issues - helping loved ones discuss end of life and palliative care.
- Palliative care easy read resources - NSW Health have created four easy read booklets to help you understand palliative care and what to do.
- Toolkit - Improving palliative care services for people with an intellectual disability.
- Talking about death and dying.
- Palliative care easy read resources - NSW Health have created four easy read booklets to help you understand palliative care and what to do.
Auslan
- Auslan videos containing end of life and palliative care information
Dementia Australia
- Palliative care and dementia - guidance for health professionals on palliative and end of life care for people with dementia and those who support them.
- Dementia Australia has a range of help sheets that can support carers and their loved ones that provide reliable information about dementia.
Voluntary assisted dying
To discuss voluntary assisted dying or to be connected with a general practitioner who can support you through the process, call the free NSW Voluntary Assisted Dying (VAD) Care Navigator Service on 1300 802 133, Monday - Friday, 8:30am - 4:30pm (excluding public holidays).
Access the following NSW Health resources for more information:
- VAD NSW process
- I am considering VAD - this includes information on what VAD is, eligibility, making decisions about end of life care, support tools and more.
- I am a family member, carer or friend - this includes information on how to support someone through the VAD process, VAD information and support for family, carers and friends.
- Information for Aboriginal people considering VAD - this includes information on what VAD is, talking to your mob about VAD, dying on country and more.
- VAD information and resources in language.
Funeral planning
Funeral planning is an essential part of preparing for the end of life. They are an effective way to ensure that your final wishes are carried out and your loved ones are taken care of.
- A guide to organising a funeral in NSW.
- Steps for planning for after death (checklist) - includes planning for burial, cremation, funerals and ways to commemorate life.
- National Funeral Directors Association frequently asked questions.
- National Funeral Directors Association planning a funeral:
- What should I consider?
- What information is required?
- Who should I contact?
- What documents do i need to provide?
Further information and support
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Palliative Approach Framework
Return to the PAF home page for further information and access to other resources for health professional.
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Community palliative and end of life care
Learn more about what we are doing in this space on our community Palliative and end of life care webpage.